To Boris Johnson,
I’ll never forget my daughter Fallon’s first day at school, in September 1998.
You see, Mr Johnson, it was also her last.
That morning, the school called my husband, Graham, then 40, to say that Fallon, 4, was unwell.
I was at the hairdresser’s, so Graham dropped her at the salon.
‘Hi, Mummy,’ she smiled.
Then her body started to convulse and she toppled to the floor.
Her head smashed against furniture as her body thrashed around.
After a week in Great Ormond Street Hospital, she was diagnosed with Lennox-Gastaut syndrome, a severe and incurable form of epilepsy.
Lesions on the brain also caused learning disabilities.
Back home, we had to explain to our other children – Cameron, then 5, and Sydney, 1 - what was happening…
