‘Each time we touched him, he would cry in pain’ My little boy Rhys took his first few tottering steps across the living room and I burst into applause.
‘Well done!’ I beamed. But next minute, his smile vanished as he tripped over.
Instinctively, I reached out to grab his arm, to steady him.
But to my horror, a handful of his skin came off in my hand.
Poor Rhys screamed out and I felt dreadful.
‘I’m sorry, darling,’ I said.
He was in so much pain.
And yet I couldn’t even comfort him with a cuddle.
See, after Rhys was born in September 2005, he was diagnosed with a severe case of a rare skin condition called epidermolysis bullosa (EB), which means his skin literally falls off at the…
