Carer Charlene Cooper, 35, lives with her husband Paul, 37, and her three children, Amelia, eight, Madison, five, and Hudson, three, in Glasgow. Her youngest, Hudson, was diagnosed with Angelman syndrome in November 2022.
She says, ‘I first noticed that Hudson was falling behind on some developmental milestones at baby group when he was six months old.
‘Of course, you repeatedly hear from people that babies are on their own timelines and he’ll inevitably catch up on his own but, as a mum-of-three, I knew something was different. Months of tests and unanswered questions left us more baffled and frustrated than before.
‘Then finally, after nearly two years, Hudson was diagnosed with a genetic condition known as Angelman syndrome a week before his second birthday.
DEVASTATED
‘I’d never heard of…
