Wanting to be proactive, I couldn’t imagine the thought of our son not being here.
What can we do to have a big impact on Jed’s life?
It was something that my husband, Michael, and I had spoken about after our son Jed, then eight, had received a life-changing diagnosis.
Unable to hit his milestones early on, Jed would bum shuffle instead of walking.
And we knew, deep down, that something about his mobility wasn’t right.
Which was a pattern that continued as Jed joined primary school.
‘Why can’t I go upstairs?’ Jed would ask frequently.
However, back and forth from Great Ormond Street and John Radcliffe Hospital, Oxford, we always had the same response.
‘By the time he reaches eight, he will catch up,’ the medics confirmed.
Only, that…
