When Jesy Nelson revealed her twin girls had been diagnosed with SMA1, it resonated with mum of three, Kayleigh Steel. Kayleigh, 39, lives with her husband Joe, 41, and their children, Edie, six, Oscar, three, and Finn, one, in Holmfirth, West Yorkshire. Oscar, like Jesy’s daughters, was diagnosed with SMA1 shortly after birth, altering their lives forever. Kayleigh recalls, ‘Watching Jesy’s heartbreaking video took me back to a very dark time. I got quite tearful watching it. I remember the whirlwind of Oscar’s diagnosis and hospital appointments so clearly and my heart went out to Jesy and her family.
GENETIC TESTS
‘Oscar’s symptoms started in the womb. I noticed he didn’t move as much as my daughter had in pregnancy. After he was born, although I was reassured initially, three…
